Spina Bifida Case Study

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For this assignment I have chosen to focus on young adults (aged 18-25) with spina bifida ( a neural tube defect) as my daughter now aged 19 years has this condition. Although I have some knowledge and understanding about caring for a child with the condition I am interested to learn more about the challenges this age group faces and the care and support available. In addition as a children’s nurse it will be beneficial to have an insight into adult care to facilitate a smooth transition from children’s services. As there is a huge variation in this condition I will focus on the most severe kind Myelomeningocele where the spinal column does not close during development in the uterus and the skin and muscle remain open resulting in nerve damage.…show more content…
It is free and the services are linked to the area covered by registration with a general practitioner. The services are available to all and the young adult with spina bifida will be under the care of a multi-disciplinary team. I have chosen to write about the role of the continence nurse in the care of my client group. This person will be part of the team responsible for the assessment and management of the urinary system and assisting the young person to gain a degree of continence. Throughout their lives this group will require specialised tests and examinations to prevent damage to the bladder and kidneys. Methods of voiding and medications will be discussed with the client, continence nurse and other agencies to provide a package of care. As spina bifida is considered a neurological condition it is covered by the National Service Framework relating to long term conditions. The NSF has divided neurological conditions into four categories and spina bifida generally fits into the ‘stable but with changing needs’. The Framework is to be used by both clients and professionals and identifies targets for both health and social care service providers to assist clients in their daily living requirements. It aims to provide more choice in care, tailored to the individual clients needs. (NSF 2004)This is particularly relevant with Spina Bifida as the condition and its symptoms vary enormously even within the same type and with a lesion in the same place. Often there will be a specialist nurse caring specifically with patients with spina bifida as the NSF aims to have care ‘provided by people with knowledge and experience of specific conditions’ (Lggulden
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